X-treme denial

This blog discusses the political and medical negligence that are going on, a quarter century after some well known epidemics of myalgic encephalomyelitis also know as chronic fatigue syndrome.

Sunday, April 14, 2013

HAWMC Day 15: On being inspired.

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Today I am detracting a bit from the prompt provided by Wego Health. The topic seemed to require way too much energy and cognitive wor...

Saturday, April 13, 2013

HAWMC Day 14: Myalgic Encephalomyelitis Activist Heroes

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M.E. Activists are a special kind. As patients, as if the illness wasn't harsh enough, we face stigma and government who do not get ...

Friday, April 12, 2013

HAWMC Day 13: A short poem

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M y disease sucks E normous stigma C are, what care? F or governments refuse to fund research S o we are going nowhere. (ME/cfs stand...

Thursday, April 11, 2013

HAWMC Day 12: What I have learnt as a patient

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I have been a nurse for nearly 20 years when I got sick in 2008. What I knew then about our socialized health care system was that ...

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HAWMC Day 11: Chronic illness and Social Media.

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Following the epidemics of ME in the mid 1980's, thousands found themselves housebound and bedbound, isolated, and with very little w...

Wednesday, April 10, 2013

HAWMC Day 10: Wordless Wednesday.

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I miss my old me.

Monday, April 8, 2013

HAWMC Day 9: On caregiving

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Today's post is about caregiving. We are being asked to discuss what advice or tip we have for caregivers. This is troublesome becaus...

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